Get involved
The men’s meetings on zoom are an opportunity to connect over share experiences
The meetings are a chance to connect with men who understand what it means to be impacted by a rare disease.
They are open to male patients and caregivers around the world.
The meeting’s have had males attend from different countries, cultures and social classes proving that men have more in common with the emotional , mental side of being impacted by a rare condition. If interested in attending of want to find out more information please leave your name and email address below.